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The methods of Dr. Kubler-Ross, the world-renowned psychiatrist and authority on death, are revealed in this exploration of her counseling work with terminal patients to help them come to an acceptance of death.
- Sales Rank: #1563252 in Books
- Published on: 1978-11
- Original language: English
- Number of items: 1
- Binding: Hardcover
- 160 pages
Review
Los Angeles Times Something in the stories of Beth, Jamie, Louise, and Jack, coupled with sensitive yet riveting images of Mal Warshaw, makes To Live Until We Say Good-Bye approach inspiration. -- Review
About the Author
Elisabeth Kübler-Ross, M.D., is a medical doctor, psychiatrist, and internationally renowned thanatologist. Her books include The Wheel of Life, the classic On Death and Dying, AIDS, and Questions and Answers on Death and Dying.
Excerpt. © Reprinted by permission. All rights reserved.
Chapter 1
Beth
Beth, the first of our friends in this book, was a most remarkable and beautiful woman -- both in terms of her outward appearance and her inner sensibilities. She was 42 years old when we met her and had been full of cancer for a couple of years. Pictures of a few years earlier revealed an outstandingly handsome woman, who had been a model in New York.
Her appearance was impeccable, and therefore, the cancer was a devastating intrusion, not only because of its ultimate fatal outcome, but because of the effect it had on the looks of a pretty young woman for whom appearance was of the utmost significance.
Childless, but surrounded by friends, she sought help from the best medical centers. She finally had surgery in Europe and returned to New York hoping for a little more time. Toni, her best friend and confidante, was her main support system. Lucy Kroll, her friend and neighbor, introduced Beth to us; the result was an all too brief but deeply moving relationship.
She managed to stay at home as long as possible, taking care of her own environment and medication without the help of a nurse. During the three months that we knew her, she had already stopped eating regular meals, was sustained by a food formula. She finally signed herself into the hospital just a couple weeks prior to her death.
Beth was also a poet and philosopher; she had spent many hours at the foot of the Soldiers and Sailors Monument on Riverside Drive near her apartment. It was a place surrounded by greenery, a place to think, reflect, and meditate, but also a place to be reminded of the transitions of life and the risks of life. It was a meeting place for young lovers and old people. It was not a coincidence that Beth chose this very place, which had been so meaningful in her life, as the place where she wanted her ashes spread after her cremation.
What Beth demonstrated to us is that when human beings have the courage to face their own finiteness and come to grips with that deepest agony, questioning, turmoil, and pain -- they emerge as new people. They begin to converse with God, or the Source, or whatever you want to call it, and a new kind of existence begins for them. We have seen this in countless cases. These patients often become poets; they become creative beyond any expectations, far beyond what their educational backgrounds had prepared them for.
This process is exemplified in Beth by some of the thoughts that demonstrate the kind of person she became.
It is so nice to go out and walk in the sunshine, it just feels good to be alive and aware.
I have an appointment with my hairdresser and a cancer specialist. I know that my hairdresser will make me feel better. I am not so sure about the cancer specialist.
If my life is a gift, why can't I spend it as I please?
Death is staring too long into the burning sun and the relief of entering a cool, dark room.
She expressed belief that only real feelings can be shared and not words alone when she wrote:
Some people read what I write, they think they know me. Some people feel what I write, they do.
The reason for all this emerging creativity in patients like Beth is the fact that we all have many hidden gifts within our own being, and they are all too frequently drowned in the negative and materialistic struggles on which we spend so much of our precious energy. Once we are able to get rid of our fears, once we have the courage to change from negative rebellion to positive nonconformism, once we have the faith in our own abilities to rise above fear, shame, guilt and negativity -- we emerge as much more creative and much freer souls.
When Beth's abdomen blew up and she looked like a pregnant woman, she did not brood about never having had a child. She picked a loose and colorful dress, put her hair up in a big knot over her head, added cosmetics to enhance her features. She looked pretty to the last day of her life. She always remained immaculate, contradicting the popular belief that all cancer patients have to look and smell bad. She was not too proud to admit that there were a few pleasures in life she was not able to give up -- like smoking a cigarette. She never had to pretend to be other than she was. She never hid her true feelings about anything. She never had to be ashamed or guilty that she had played a game at the end of her life to conform to the needs of other people rather than to her own.
The kind of person Beth was is perhaps best illustrated in her own world of dreams and longing for a love that is rarely found.
You put your arms around me, held me tight and close to you and said, "If it be true you don't have long to live then every moment of every hour let's live them together. I love you and wanted to spend my growing old years with you but if you must leave me I shall remember you as something special I had for a little while."
That's the way it could have been.
When it was time for me to come home from the hospital you were so eager you were much too early. You waited with your arms full of lilacs, gave me your special smile and said, "I've come to take you home, my darling, now my life can begin anew."
That's the way it could have been.
We used to go out together every night but now I get tired so easily and would waken early to enjoy the long, beautiful summer mornings. You said, "Going out is empty to me without you by my side." So we would lie in bed side-by-side, holding hands, not saying much but sharing.
That's the way it could have been.
I remember those long early morning walks we took together. We were both filled with a new awareness. We gloried in the smell of grass newly mown. We laughed to think that we had never really listened to the birds singing. Nothing and no one was ugly to us because this was life, and whatever came later, we had realized that what we had together was special and it could never be taken from us.
That's the way it could have been.
As the cancer grew within me, my body became misshapen and ugly, but it didn't make any difference to you. You said, "I love what you are and that makes you always beautiful to me." Then I realized how foolish I was and fell asleep with a smile on my face because your love did not waver.
That's the way it could have been.
Now when we would walk together my legs would weaken but I knew I would never fall because you were there to hold me. When I would waken in the night screaming with pain you were always there and you would say, "Hold on a moment longer, my love, just a moment longer."
That's the way it could have been.
Sometimes I would say to you, "Why don't you go out by yourself or some of your friends?" And you would say, "Now that would be silly for me to do when I've got you to enjoy. I'm afraid life will seem very empty to me when you're gone so I want to fill myself with you now; that way you'll forever live on within me."
That's the way it could have been.
Once I was even foolish enough to suggest to you that you should find another woman. You got so angry, you nearly frightened me,but secretly I was pleased too when you said, "You are all I want or need, no other woman no matter how young or how beautiful could give me what just one tender kiss from your lips can give me."
That's the way it could have been.
Then came the momentous day, when we learned there was real hope for me. It's funny that's the first time I saw tears in your eyes, but your voice sang when you said to me, "Deep inside I knew you wouldn't be taken from me and it made me strong for you, now my strength will know no bounds, we will fight this battle together my precious one and we will win. Some day we will look back on these nightmare days, your hair will be gray and mine will probably all be gone, but our love will burn as strongly as ever and we will know those times of pain and sorrow were all worthwhile and we still have each other."
That's the way it could have been.
It is not important to know what the reality of Beth's life was in terms of the love she had. Most people are unable to understand the true essence of love. Love is not conditional; it has no strings attached to it, no expectations. This is the love that Beth, and those like her, was dreaming of.
Too few patients experience this kind of love in their lifetime and this is the hardest and yet most important lesson all of us have to learn. Those like Beth help us to get a glimpse of what it could be if we really understood the gift of LOVE.
Beth believed, no, she knew about the existence of life after death. She talked about her out-of-body experiences and said that death would be the one trip from which she would not return. She talked to her father while close to death herself.
She also wrote a little personal note to her father shortly before she died:
Hi, Pop, you have been dead for some time now.
Supposedly
I guess I know better -- huh?
How much longer will you
make me wait?
The last page in her book of poems ends with:
What can I do with the rest of my life?
LIVE ALL OF IT!!
Yes, Beth, you lived all of it and you have been an example to many of us. We thank you for being, we have been blessed by your existence, and we will remember your last handwritten words which say good-bye to us:
Voices whispering, Beth, Beth
You can no longer stay
Hands reaching out to grasp
Helping me on my way.
I'll no longer ache with sorrow
No longer feel this pain
So adieu and fare thee well now
I shan't see thee again.
[Editor's Note: These poems are from the diaries which Beth kept during the last months of her illness.]
I used to have
Strange visitors
In the night
They no longer
Come to me.
I miss them.
LOVE
IS
Honeycolored laughter
Ambercolored laughter
Scarlet swings against a backdrop
Of freshly fallen snow.
It does
Strange
Things
Like
Dying.
If I could remember What I forgot
And forget what I remember
(with exceptions -- of course)
I think
It would be better for me
But, I'm not sure
What to remember...
Or forget...
Humiliation lies in the hands
Of a beloved,
Of a
False friend
Better to have the Pride
Of aloneness,
A defiant end.
I used to wish for death
A lot of the time.
Then I died
For a little time.
Now I wish to die
Some of the time.
But, now I know
It will be
For all the time.
There is a sadness growing Within me
I do not want it so, but I know
I cry with bitterness Filling me.
It does not hurt the way
It did
Yesterday
There is only room for Just so much sorrow.
What will I put in Its place
Tomorrow?
Copyright © 1978 by Ross Medical Associates, S.C., and Mal Warshaw
Most helpful customer reviews
72 of 73 people found the following review helpful.
Living with Dying
By A Customer
Reading a book about confrontations with death and dying by the terminal ill and by their families and loved ones may not sound like anyone's idea of "escapist fare" or a good rainy day pick-me-up, but this large picture book is first and foremost about the value of life and living. Undoubtedly one of the most "important" books I have read, To Live Until We Say Good-Bye spotlights three personal stories: a New York City poet and model dying of cancer, a young girl suffering with a brain tumor, and an older woman who refuses treatment of her illness to lead the remainder of her life in her own home. The stories are remarkable because there is a touching sense of revelation to each--that none of them had perhaps lived so fully and completely until they learned time was running out. The young girl's story, "Jamie," is especially moving because it not only deals with her concerns and fears about her future, but also those of her single mother and her young brother--and, ultimately, although the process of losing a loved one is unimaginably painful, the family is able to find some peace in their ability to make the final days meaningful--and full of life. Elisabeth Kubler-Ross narrates the stories, and Mal Warshaw provides the photographs; together, they have assembled an unpretentious and dignified lesson about seeking the value in life--surely, a message that is beneficial to and yet overlooked very often by us all
0 of 0 people found the following review helpful.
Skip this one.
By Florence Nacho
I've read most of Kubler-Ross's books and enjoyed them, but this is one I would skip. It's a bunch of stories about dying people and their last days. Sad stories with not a lot of insight. I read it in one night and found it depressing and un-enlightening. I donated it the next day without hesitation.
16 of 17 people found the following review helpful.
An exceptionally moving work that showcases true courage, love, grace and hope for all, a real gift.
By Christian Engler
The book, To Live Until We Say Good-Bye, is not your common book on dying and grief or even the medical psychology of it, as is quite internationally acknowledged with many of Kubler-Ross's previous works, i.e. On Death and Dying and On Children and Death, et cetera. Rather, out of all of her works (Kubler-Ross), I would have to say that this one is the most accessible and the most outright, in-your-face emotional, the one that really tugs at the heartstrings. But it is a work that does so in a positive, open and meaningful way. Medical and psychiatric jargon is totally set aside and the four dying patients-for whom this book is about-Beth, Jamie, Louise and Jack, are allowed to come to the forefront, to have their stories and experiences related to those (the readers) who are living or could possible be dying themselves. Accompanied by the well written text of Elizabeth Kubler-Ross and the varied contributors are the affecting black and white photographs by Mal Warshaw, photos taken of the very subjects in their assorted states in the dying process. Nothing is held back in respects to the people who are profiled-the good, the bad and the ugly-yet dignity unequivocally pervades. In this book, we meet a former model (Beth), who to the very end, clung to her physical beauty as her paramount asset. However, her written poetry illustrated her articulate and intelligent substance that went way beyond looks: "Voices whispering, Beth, Beth/You can no longer stay/Hand reaching out to grasp/Helping me on my way./I'll no longer ache with sorrow/No longer feel this pain/So adieu and fare thee well now/I shan't see thee again. (P. 37). Also, we meet 71-year-old Jack, a former construction worker and rebounding alcoholic who sadly, lived to see his son die of lung cancer. But he found redemption and purpose by building doll houses for charity while as a patient at St. Rose's Home, run by the Hawthorne Dominicans in New york City. Through the series of photographs, his religious and psychological evolution becomes clearly evident, and it is a humbling and beautiful thing to see. And it is so for all those profiled, especially for Jamie and Louise, the other two patients who become are teachers. And their chapters are equally moving and powerful, if not more so. There too is an in-depth chapter on the fantastic work done by hospice and the heroics of everyday volunteers, people young and old who do not give "all" of themselves in order to give the best of themselves. All in all, To Live Until We Say Good-Bye is another great work that looks at life's final journey.
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